When Millie and Louis learned one of their twins had anencephaly, they were forced into a nightmare no parent is prepared for: planning for birth and death at the same time. Skye lived only moments, yet her brief life changed everything. In the NICU, casual questions like “So, is it just the one?” cut like knives. Staff meant well; the pain came from what they didn’t know.
Determined that no other parent should endure that added cruelty, the couple founded the Skye High Foundation. Their purple butterfly stickers now appear on incubators and cots to wordlessly say, “One of these babies is missing.” Behind that symbol are support groups, late-night messages, and parents who finally feel seen. They cannot rewrite Skye’s story, but through every butterfly, her name is spoken and another family feels a little less alone.